Dementia Dispatch Issue 18, October 2017

NNIDR Australian Dementia Forum -15-17 October 2017, Melbourne Convention & Exhibition Centre

We are delighted to introduce our Keynote Speaker for the upcoming forum:

Professor Sam Gandy MD PhD

Mount Sinai Professor of Alzheimer’s Disease Research

Sam Gandy

Dr Gandy is an international expert in the metabolism of amyloid, the substance that clogs the brain in patients with Alzheimer's. In 1989, Gandy and his team discovered the first drugs that could lower formation of amyloid. Dr Gandy has written more than 250 original papers, chapters and reviews on this topic. Dr Gandy has received continuous National Institutes of Health funding for his research on amyloid metabolism since 1986. Dr Gandy is Professor of Alzheimer's Disease Research, Professor of Neurology and Psychiatry and Associate Director of the Mount Sinai Alzheimer's Disease Research Center, and Chair, National Medical and Scientific Advisory Council of the Alzheimer's Association.

Dr Gandy is a member of the Faculty of 1000 Biology and serves as a consulting editor for The Journal of Clinical Investigation. He also serves on the Editorial Advisory Boards for the journals Public Library of Science-Medicine, Neurodegenerative Diseases and Current Alzheimer Research. He is associate editor of the journals Molecular Neurodegeneration and Alzheimer Disease and Associated Disorders. From 1996-2006, Dr Gandy was Director of the Cold Spring Harbor Laboratories/Wellcome Trust, Annual Summer Course on the Neurobiology of Human Neurological Disorders. In 2000, he became chief organiser for the Cold Spring Harbor Laboratories, Bi-Annual Winter Biotechnology Conference on Therapeutic Opportunities in Neurodegenerative Diseases and continued in that role until 2010. Dr Gandy is also the Founding Director of the Mount Sinai Alzheimer’s Disease Research Center

To find out more about the research being presented at the upcoming Australian Dementia Forum, we invite you to look at the newly released program.

Funding Opportunity

Australian

NHMRC Boosting Dementia Research Grants, Priority Round 3 (PR3): National Dementia Network

NHMRC has allocated funding to support a multidisciplinary, national team to establish and maintain a National Dementia Network under PR3. 

The objective of the Network is to improve the lives of people with dementia, as well as accelerating translation of interventions to treat and prevent dementia, beginning with establishing and maintaining a national dementia registry as a national resource.

Flowing from the registry, the Network is expected to deliver the following outcomes:

  1. report on the natural history, disease trajectory and outcomes of dementia and cognitive impairment in accordance with the Framework for Australian clinical quality registries (link is external) developed by the Australian Commission on Safety and Quality in Health Care,
  2. establish suitable cohorts of highly characterised individuals as part of the registry that could participate in targeted and relevant clinical trials, and
  3. develop a network of trial sites, which can be used for clinical dementia trials.

To achieve the intended outcomes, the Network will need to be an effective collaboration of dementia researchers as well as experts in clinical quality improvement, epidemiology, biostatistics, clinical data management, bioethics, privacy law and research governance. To ensure adequate recruitment to the registry the Network will need to engage appropriately with primary care and clinician practitioner groups, memory clinics, hospitals, service providers and consumer groups.

For further information visit the NHMRC website.

Alzheimer’s Australia Dementia Research Foundation 2017 Dementia Grants Program - Round 2 NOW OPEN

Four PhD Scholarships of $30,000 per year over three years are on offer in Round 2, 2017.

For more information please visit information for applicants page and be sure to check the eligibility requirements.

International

H2020-JTI-IMI2-2017-11 IMI eleventh call for proposals – single stage

The Innovative Medicines Initiative Joint Undertaking invites proposals for its eleventh call. This supports research related to the future of medicine in areas where societal, public health and biomedical industry competitiveness goals are aligned and require the pooling of resources and greater collaboration between the public and private sectors. 

What’s On

Alzheimer’s Australia Biennial National Dementia Conference

Be the change logo

17 -20 October 2017

The 17th Alzheimer’s Australia Biennial National Dementia Conference immediately follows the NNIDR Australian Dementia Forum and is shaping up to be a really exciting and engaging event.  This event will inspire delegates to Be the Change in improving the lives of people living with dementia, with an extraordinary list of international and national key note speakers. Speakers include Naomi Feil, USA, world-renowned since the 1960s, for her validation method in dementia care; Prof Sam Gandy, USA, also speaking at the Australian Dementia Forum; and Prof Dawn Brooker, UK, who has dedicated her career to developing evidence based, practical ways to enable those living with dementia to have the best possible quality of life.

Interactive workshops will provide delegates with unique opportunities to hear from international thought leaders and interact with other delegates.

The event will offer delegates the opportunity to experience Alzheimer’s Australia’s award-winning, groundbreaking technology using virtual reality, video games, 3D design, apps and multiple websites.

 

The 5th Australian Palliative Care Research Colloquium

Palliative care

26-27 October 2017

Are you interested in the provision of evidence based care for patients with advanced disease?

Hosted by the Centre for Palliative Care (c/o St. Vincent’s Hospital and a Collaborative Centre of the University of Melbourne, Australia), the Colloquium provides an invaluable opportunity for those involved in the provision of evidence based care of patients with advanced disease to learn, connect and collaborate.

The keynote speaker this year is Professor Hal Swerissen from the Grattan Institute & La Trobe University, who will talk about how palliative care research can influence health policy.

Other topics that will be discussed during the 5th Australian Palliative Care Research Colloquium include:

  • Conducting research in clinical education: how data can demonstrate efficacy and drive practice change.
  • Program Logic: Preparation prevents poor performance – using planning frameworks to develop, conduct and measure the impact of your research.
  • Clinical Trials: Changing the World! – How to build successful clinical trials into your research.
  • All you need to know about the methodological insights when conducting palliative care research involving complex populations.
  • The world needs to know about your research: Using social media to disseminate your work.

The Palliative Care Research Network (PCRN) will also host an interactive pre-Colloquium breakfast workshop on Communicating research to a lay audience on Thursday 26 October 2017. At this workshop, Sasha Petrova from The Conversation will provide insights on how to communicate your research to the general public in a language that is understandable to those who are not working in the medical field.

For more information and to register, please go to: http://www.apcrc.net.au/

Useful References

Resources: The Lancet Commission on Dementia

Dementia is the greatest global challenge for health and social care in the 21st century: around 50 million people worldwide have dementia and this number is predicted to triple by 2050. The Lancet Commission on Dementia aims to review the best available evidence and produce recommendations on how to best manage, or even prevent, the dementia epidemic.

Dementia is not an inevitable consequence of ageing and the Commission identifies nine potentially modifiable health and lifestyle factors from different phases of life that, if eliminated, might prevent dementia. Although therapies are currently not available to modify the underlying disease process, the Commission outlines pharmacological and social interventions that are able to help manage the manifestations of dementia.

The Commission is freely accessible with registration, which is itself quick, easy, and free.

We hope you will find this content both useful and interesting.

Gender in the Global Research Landscape Report

Critical issues related to gender disparity and bias must be examined by sound studies. Drawing upon its high-quality global data sources, analytical expertise and unique gender disambiguation methodology, Elsevier has produced this comprehensive new report, Gender in the Global Research Landscape. It is an evidence-based examination, through a gender lens, of research performance worldwide and is a vehicle for understanding the role of gender within the structure of the global research enterprise.     

Share your story 

If you have a story to share on dementia, whether it’s research or personal experience, please contact nnidr.admin@alzheimers.org.au or phone 02 6217 9172. Your story may be published in the next newsletter, or used as vignettes in Institute-related communication materials, or created into a feature story and pitched to the media.