Australian government funding for the Australian Dementia Network (ADNeT) was announced by the Hon. Ken Wyatt AM, MP, Minister for Aged Care on 2 July 2018. ADNeT is the largest single project funded to date through the Government’s $200 million, five-year Boosting Dementia Research Initiative launched in 2014 by the National Health and Medical Research Council (NHMRC).
ADNeT will establish an integrated network of dementia researchers, clinicians and health service providers to enable ongoing, high-quality translation of research into clinical care for Australians living with cognitive impairment and dementia. ADNeT will enable fast recruitment of trial-ready research participants, and will support participants through their involvement in clinical trials.
When will the registry be up and running?
It will take at least a year for the registry to be up and running – possibly longer.
Updates on progress in establishing the registry can be obtained from the research team via email at Denise.El-Sheikh@austin.org.au.
Who is responsible for setting up the registry?
The registry is being developed by a team of dementia researchers with Australian government funding assisted by other clinicians and health service providers.
The ADNet team can be contacted via email at Denise.El-Sheikh@austin.org.au.
How do I register my interest?
Details about how to enrol will be publicly announced when the registry is rolled out across Australia.
If you are keen to find out more about the registry in the meantime you can contact the research team via email at Denise.El-Sheikh@austin.org.au.
Can I get involved in clinical trials now?
There are dementia trials underway across Australia. You can apply now to these trial sites to see if you are suitable for a trial that is currently recruiting participants.
ADNeT will boost these trials once it is up and running.
Information on some dementia-related trials and sites currently running in Australia, including what each trial is about and who to contact in order to become involved, can be found on the AC4R website and the Dementia Australia website.
The Australian Government website – Australian Clinical Trials – also has information and resources about clinical trials across a range of health conditions.
If you cannot find the information you are looking for on any of these websites, you can talk with your GP, or contact your regional major hospitals to ask if they are running trials for dementia prevention and treatment and get the contact details for the local co-ordinator.